Brother creates foundation in his sister’s memory
By Katie Lofrano
Ashley Rose McGarry of Delano passed away March 11, 2007, at the age of 16 from tuberous sclerosis, which is a neurological skin disease that causes tumors in the large organs.
Ashley was only 2 months old when she was diagnosed with tuberous sclerosis, and she fought through it for her whole life. Her family was there for her the whole time.
She would have to fight through seizures periodically. Ashley took medicine to help slow down the progress of the disease, but she still battled with it.
Ashley had brain surgery one year before she passed away to help remove tumors in her brain. After that, she was in and out of the hospital for about a year to keep an eye on how she was doing.
She also ended up having to get her colon removed after her family found out that it was not working properly. Her family had to bring her to a special home called Rolling Acres to help give her extra care.
Ashley’s brother, Dylan McGarry, said, “Ashley enjoyed listening to music, and liked to go for car rides. She would wait by the door till someone would ask if she wanted to go for a ride.”
Dylan McGarry started a program called Ashley’s Army by Pennies and Beyond in 2004.
Through this program, he hosts concert events to help raise money to donate to Tuberous Sclerosis Alliance to assist others who have the same disease, and to help find a cure for it.
Ashley’s first benefit concert took place in March, and Dylan and his crew raised $250 to donate. They will be hosting another concert Friday, May 30 to help raise additional funds.
The concert will take place from 7 to 11 p.m. at the old city hall in Delano on Bridge Avenue.
Performers at the concert event include bands Blood Root Mother, Mister Fister, Mass Madness, Meat Hook, Monkey Dog Party, and rappers Zach Daddy and Dustmann.
For more information
To learn more about Ashley’s Army by Pennies and Beyond, contact founder Dylan T. McGarry at (612) 716-0250.
The concert will take place Friday, May 30 from 7 to 11 p.m., and feature entertainment by Mister Fister, Blood Root Mother, Dustmann, and more.
Cost is $5 at the door.